News Releases
Caregiver/Family Chat Group
We hear you, and we are here for you. Announcing the Caregiver/Family Chat Group If APBD touches your life through a family member or loved one, whether you are a hands-on caregiver or within the circle of emotional support, [Read More]
APBD Research Proposals Wanted
Brooklyn, New York, August 19, 2020 -- APBD Research Foundation in conjunction with the University of Pennsylvania launches a call for APBD research proposals. Letter of Intent are due to the UPenn Orphan Disease Center no later than September 18, [Read More]
Foundation’s Biomarker Workshop Spurs Collaboration and Hope
On June 22, the Adult Polyglucosan Body Disease Research Foundation hosted its first Biomarker Workshop to facilitate a vigorous exchange among researchers and patient advocates regarding potential biomarkers for drug discovery and development targeting APBD. The Workshop -- hosted [Read More]
APBD Documentary Premieres at the 2020 Berkshire Jewish Film Festival
We are excited to have “Life Through a Lens” featured at the Berkshire Jewish Film Festival on July 6. Additionally, we are honored to have Dr. Edwin H. Kolodny -- Chair of our Scientific Advisory Board -- conduct a TalkBack [Read More]
Thank you for making #ShowYourStripes a great success this year in honor of Rare Disease Day!
Thank you for making #ShowYourStripes a great success this year in honor of Rare Disease Day! This past week, our APBD community did #ShowYourStripes and more than 12 people shared a quote about their hopes and dreams for APBD research [Read More]
COVID-19 Resources
A list of resources, information and activities. Click on the text of any of the items listed to go to the website. Government Resources: CDC (Center for Disease Control) WHO (World Health Organization) Rare Disease Organizations Resources: Global Genes NORD [Read More]