News Release –ROOTS: Jewish Genes and Cuisine

TV HOST ALI ROSEN AND MASTER CHEF JEFFREY YOSKOWITZ SPREAD AWARENESS OF JEWISH GENETIC DISEASES AT “ROOTS: Jewish Genes and Cuisine” Online Event Benefited the Adult Polyglucosan Body Disease Research Foundation NEW YORK, March 5, 2021 -- Emmy-nominated TV personality [...]

March 5th, 2021|

Meet Our Honoree: Dr. Jesse Cedarbaum

Meet Our Honoree Dr. Jesse Cedarbaum is Professor, Adjunct of Neurology and Psychiatry at Yale Medical School and Founder and Head of Coeruleus Clinical Sciences, LLC. Dr. Cedarbaum currently serves on the Foundation’s Pharmaceutical Development Committee, where he is helping [...]

February 25th, 2021|

New Research Paves the Way for Therapeutics for APBD

By Gillian Neimark Adult Polyglucosan Body Disease (APBD) is one of 7,000 rare diseases in the U.S. There are currently no effective treatments for the challenging neurodegenerative disorder. That may change with the publication of a study that identifies two [...]

December 23rd, 2020|

Most Read APBD Articles of 2020

APBD is a 24/7/365 battle. From getting to an accurate diagnosis, to seeking support, to finding trusted resources, to connecting with community members who understand, and working towards a cure, the APBD Research Foundation stands with you on this journey. [...]

December 21st, 2020|

Caregiver/Family Chat Group

We hear you, and we are here for you. Announcing the Caregiver/Family Chat Group If APBD touches your life through a family member or loved one, whether you are a hands-on caregiver or within the circle of emotional support, [...]

October 14th, 2020|

Why Sheri Loves AmazonSmile!

"It's so easy!" shared Sheri, a member of our APBD Chat group, about shopping on AmazonSmile. "I buy all kinds of stuff and everything I buy donates to the APBD Research Foundation.  I even bought an entire office set, including [...]

September 27th, 2020|

APBD Research Proposals Wanted

Brooklyn, New York, August 19, 2020 -- APBD Research Foundation in conjunction with the University of Pennsylvania launches a call for APBD research proposals.  Letter of Intent are due to the UPenn Orphan Disease Center no later than September 18, [...]

August 19th, 2020|

APBD – A Daughter’s Perspective

By Feigy Weiss Rosenberg July 28, 2020 Editor’s Note: This is the first in a series of articles written by Feigy W. Rosenberg, daughter of the late Gregory Weiss who was one of the co-founders of the APBD [...]

August 7th, 2020|

Hosting a Facebook Fundraiser for APBD Research

By Susan Coddon Earlier this summer, I hosted a Facebook fundraiser for my birthday and raised $671 to advance APBD research. I was so touched to see my family and friends (some from as far back as high school) step [...]

August 3rd, 2020|

Foundation’s Biomarker Workshop Spurs Collaboration and Hope

On June 22, the Adult Polyglucosan Body Disease Research Foundation hosted its first Biomarker Workshop to facilitate a vigorous exchange among researchers and patient advocates regarding potential biomarkers for drug discovery and development targeting APBD. The Workshop -- hosted [...]

June 23rd, 2020|