APBD Ad Debuts at Rare New England’s Annual Conference

October 25, 2021 We're excited to share this ad that we developed for the Rare New England's (RNE) Annual Conference this past October. Raising the public profile and recognizing the hallmark symptoms of APBD is a crucial facet of [...]

October 25th, 2021|

A Daughter’s Reflections on APBD

Editor’s Note: This is the second in a series of articles written by Feigy W. Rosenberg, daughter of the late Gregory Weiss, who was one of the co-founders of the APBD Research Foundation. Feigy shares from her heart, hoping [...]

August 27th, 2021|

Call for APBD Research Proposals — MDBR Funding Opportunity

August 26, 2021 The APBD Research Foundation is pleased to announce the opportunity of one $99,025 grant or two $49,513 grants through the University of Pennsylvania's Orphan Disease Center Million Dollar Bike Ride Pilot Grant Program. For six consecutive years, [...]

August 27th, 2021|

2021 APBD Tour de Friends Team at the Million Dollar Bike Ride

THANK YOU! We had 89 enthusiastic and imaginative virtual riders on the Tour de Friends team this year! The selfies we share here were fun to collect but also accomplish something very important. They show donors, researchers, physicians, pharmaceutical leaders, and government decision [...]

July 20th, 2021|

News Release –ROOTS: Jewish Genes and Cuisine

TV HOST ALI ROSEN AND MASTER CHEF JEFFREY YOSKOWITZ SPREAD AWARENESS OF JEWISH GENETIC DISEASES AT “ROOTS: Jewish Genes and Cuisine” Online Event Benefited the Adult Polyglucosan Body Disease Research Foundation NEW YORK, March 5, 2021 -- Emmy-nominated TV personality [...]

March 5th, 2021|

Meet Our Honoree: Dr. Jesse Cedarbaum

Meet Our Honoree Dr. Jesse Cedarbaum is Professor, Adjunct of Neurology and Psychiatry at Yale Medical School and Founder and Head of Coeruleus Clinical Sciences, LLC. Dr. Cedarbaum currently serves on the Foundation’s Pharmaceutical Development Committee, where he is helping [...]

February 25th, 2021|

New Research Paves the Way for Therapeutics for APBD

By Gillian Neimark Adult Polyglucosan Body Disease (APBD) is one of 7,000 rare diseases in the U.S. There are currently no effective treatments for the challenging neurodegenerative disorder. That may change with the publication of a study that identifies two [...]

December 23rd, 2020|

Most Read APBD Articles of 2020

APBD is a 24/7/365 battle. From getting to an accurate diagnosis, to seeking support, to finding trusted resources, to connecting with community members who understand, and working towards a cure, the APBD Research Foundation stands with you on this journey. [...]

December 21st, 2020|

Angela Genge, MD, FRCP(S) Joins the Foundation’s Scientific Advisory Board

The APBD Research Foundation today announced that Angela Genge, MD, FRCPS, -- executive director of the Clinical Research Unit at the Montreal Neurological Institute-Hospital -- has joined the Foundation’s Scientific Advisory Board. "Dr. Genge is a world-renowned expert in rare [...]

November 13th, 2020|

Caregiver/Family Chat Group

We hear you, and we are here for you. Announcing the Caregiver/Family Chat Group If APBD touches your life through a family member or loved one, whether you are a hands-on caregiver or within the circle of emotional support, [...]

October 14th, 2020|

Why Sheri Loves AmazonSmile!

"It's so easy!" shared Sheri, a member of our APBD Chat group, about shopping on AmazonSmile. "I buy all kinds of stuff and everything I buy donates to the APBD Research Foundation.  I even bought an entire office set, including [...]

September 27th, 2020|