Dedicated to finding a cure for APBD,

while improving the lives of those affected

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    Support our APBD Tour de Friends Virtual Team in our sixth participation in the Million Dollar Bike Ride for rare disease research.

    Help us fund research projects aimed at much-needed treatments for APBD.

    Our goal is to raise $100,000 for research this year!

    ** UPenn’s Orphan Disease Center matches dollar-for-dollar the first $30,000 in donations made using this link. Community supporters will also match the Orphan Disease Center’s match. That’s a triple play!

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    We Are APBD

    Dr. Angela Genge Discusses Biomarker Work In Related Fields

    Dr. Gülin Öz Discusses Biomarker Work In Related Fields