Dedicated to finding a cure for Adult Polyglucosan Body Disease (APBD), while improving the lives of those affected Providing Support Finding Answers Building Community Featured ContentMissed a newsletter? Check out our Newsletter ArchiveHave you been recently diagnosed? Did you know that misdiagnosis is a common part of the APBD journey?Managing APBD requires working with a team of healthcare professionalsFeatured Research Highlights What's New Featured Mar 26, 2026 Carol Rosenstock Joins the APBD Research Foundation’s Board of Directors Mar 26, 2026 Mar 26, 2026 Mar 25, 2026 Developing a "Disease Concept Model" for APBD -- a Collaborative Research Initiative Mar 25, 2026 Mar 25, 2026 Feb 20, 2026 APBD Research Foundation 2025 Rally for Research Grant Series: UCLA Scientists Awarded Pilot Grant to Discover New APBD Biomarkers Feb 20, 2026 Feb 20, 2026 Feb 20, 2026 n-Lorem Foundation ASO for the Deep Intronic Mutation Causing APBD Receives FDA Approval for n-of-1 Clinical Trials Feb 20, 2026 Feb 20, 2026 Check out more Foundation News… Upcoming Events Patient Chat Join us on the fourth Wednesday of every monthMore info Caregiver/ Family Chat Join us on the second Thursday of every monthMore info Past Events APBD Tour de Friends Rally for Research More info Rare Disease Day More info Scientific Conferences More info
