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The APBD and GSD IV Clinical Practice Guideline is an important resource for you and your healthcare team. We have developed a card, with a QR code, that when scanned with your phone, takes you to the website featuring the Guideline in its entirety.
You can download and print your copy or you can order cards for yourself and your healthcare team. Keep the cards in your wallet and car, so you have access to them whenever you see your doctor. Be sure to also share the cards with as many of your health care team members as possible.
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Diagnosed, Now What?
Welcome Remarks — 2022 APBD Scientific & Community Conference
10:59
Orhan Akman, PhD discusses antisense oligonucleotide (ASO) as a novel therapeutic approach for APBD
22:43
APBD PSA 7 13
1:36
We Are APBD
6:17
Help us spread the word
