News Releases
Art Glassman and Beth Katz Join the APBD Research Foundation’s Board of Directors
The APBD Research Foundation is delighted to announce that Art Glassman and Beth Katz have joined the Board of Directors. Art Glassman is a retired estate planning and tax attorney in Minnesota. His late wife, Penny, was diagnosed with [...]
University of Florida and UT Southwestern Scientists Awarded 2022 Million Dollar Bike Ride Grants for APBD Research
The APBD Research Foundation is pleased to share that Matthew Gentry, PhD (University of Florida) and Berge Minassian, MD and Mayank Verma MD, PhD (UT Southwestern Medical Center) are the recipients of rare disease research grants from the University [...]
APBD Community Recognizes Rare Disease Day
We're excited about joining the National Organization for Rare Disorders and the broader rare disease community around the world once again in celebrating Rare Disease Day. Leading up to February 28, we asked our community to wear zebra-striped [...]
APBD Research Foundation Appoints its First Executive Director
Dear APBD community, On behalf of the Board of Directors, we are delighted to announce Natacha Pires as the APBD Research Foundation’s first executive director. Natacha brings over 15 years of nonprofit/business management, communications, and development experience along with [...]
JUST PUBLISHED: Clinical Practice Guideline for APBD and GSD IV Diseases
The APBD Research Foundation and the Association for Glycogen Storage Disease (AGSD) are excited to announce the publication of “Diagnosis and Management of Glycogen Storage Disease Type IV, Including Adult Polyglucosan Body Disease: A Clinical Practice Resource” in the [...]
Bruce Rosky Talks About APBD and Caregiving on KevinMD.com
We are excited to share that Bruce Rosky’s narrative on caregiving for his wife and hero, Jennifer, who was diagnosed with APBD in 2016, was published on KevinMD.com. Click here to read the narrative... [...]