News Releases
APBD Research Funding Opportunity Through UPenn’s Million Dollar Bike Ride Pilot Grant Program
The APBD Research Foundation in partnership with the Orphan Disease Center (ODC) at the University of Pennsylvania is pleased to announce the 2023 Million Dollar Bike Ride Pilot Grant Program. We are honored to be a part of [...]
Michael Canmann Joins the APBD Research Foundation’s Board of Directors
The APBD Research Foundation is delighted to announce the appointment of Michael Canmann to its Board of Directors. Michael Canmann is Executive Vice President & Chief Financial Officer of CC Industries, Inc. - a Henry Crown Company. He has over [...]
Foundation Partners with Probably Genetic to Address Diagnostic Challenges
We are thrilled to announce that the APBD Research Foundation has partnered with Probably Genetic to increase access to genetic testing within our community. APBD is an ultra-rare, monogenic, and complex multi-system condition. Because it is difficult for health [...]
APBD Tour de Friends Team Raises $97,000 During the 2023 Million Dollar Bike Ride For Rare Disease Research
We had our largest group yet: 290 eager and imaginative riders, walkers, and donors on the APBD Tour de Friends team participated in the 2023 Million Dollar Bike Ride (MDBR) on June 10. It was our eighth consecutive year participating [...]
Paul Ashley Joins the APBD Research Foundation’s Board of Directors
The APBD Research Foundation is delighted to announce that Paul Ashley has joined the Board of Directors. Paul is based in Calgary and has more than 25 years of sales and account management experience.“We are thrilled to welcome Paul to the [...]
Foundation Approves and Implements its 2023-2025 Strategic Plan
We are excited to share the APBD Research Foundation’s 2023-2025 Strategic Plan. This Strategic Plan is the result of efforts spanning eight months, involving our Board of Directors, members of our Scientific Advisory Board, staff, mentors, and Foundation partners [...]