News Releases
Hadassah Medical Center Scientist Awarded Research Grant to Advance a Promising Small Molecule for the Treatment of Adult Polyglucosan Body Disease
New York, NY – The APBD Research Foundation is pleased to announce the awarding of a $50,303 research grant to Or Kakhlon, PhD at Hadassah-Hebrew University Medical Center for the advancement of a small molecule compound with potential as a [...]
APBD Research Foundation Engages the FDA in Patient Listening Session
December 21, 2021 On October 28, 2021, the APBD Research Foundation engaged the U.S. Food and Drug Administration (FDA) in a Patient-Led Listening Session to share the burden of APBD and the needs of our community. Click [...]
APBD Ad Debuts at Rare New England’s Annual Conference
October 25, 2021 We're excited to share this ad that we developed for the Rare New England's (RNE) Annual Conference this past October. Raising the public profile and recognizing the hallmark symptoms of APBD is a crucial facet of [...]
Developing Healthcare Guidelines for APBD and Related GSD IV Diseases: A Collaborative Effort
September 30, 2021 New York, NY – The APBD Research Foundation is excited to partner with the Association for Glycogen Storage Disease (AGSD) on the development of healthcare guidelines for APBD and related Type IV Glycogen Storage (GSD [...]
Call for APBD Research Proposals — MDBR Funding Opportunity
August 26, 2021 The APBD Research Foundation is pleased to announce the opportunity of one $99,025 grant or two $49,513 grants through the University of Pennsylvania's Orphan Disease Center Million Dollar Bike Ride Pilot Grant Program. For six consecutive years, [...]
APBD Research Foundation Selected to Participate in Rare Genomes Project Disease Prevalence Study
New York, NY – The Adult Polyglucosan Body Disease (APBD) Research Foundation has been selected to participate in a disease prevalence study led by the Rare Genomes Project. As a Chan Zuckerberg Initiative - Rare As One grantee, the [...]