News Releases
The APBD Research Foundation Mourns the Passing of Co-Founder Michael Weiss
New York, NY – The APBD Research Foundation shares with deep regret the passing of our co-founder Michael Weiss on September 6, 2025 from the consequences of APBD. From left to right: Michael, Gregory, and Emil Weiss In 2005, [Read More]
Record-Breaking Success: APBD Tour de Friends Rally for Research Raises $178,000
We are thrilled to announce that our community raised an incredible $178,404 during the APBD Tour de Friends Rally for Research fundraising campaign, exceeding our original goal of $150,000. Together, we demonstrated the strength and unity of our [Read More]
Golden Heart Flower Announces Phase I Trial in Europe
We’re excited to share that Golden Heart Flower, Ltd. (GHF) has just launched a Phase I clinical trial in Europe to study GHF-201 in adult healthy volunteers. GHF-201 is a therapy designed to reduce polyglucosan body accumulation -- the [Read More]
Rare Genomes Project Researchers Update the Global Genetic Prevalence of GBE1-related Diseases to 34,000
The estimated global genetic prevalence of GBE1-related diseases -- APBD and early-onset forms of Glycogen Storage Disease Type IV included -- has been updated from 1 in 325,000 (reported in 2022) to 1/236,000. This updated estimate suggests that up [Read More]
Lindsay Gill, Ph.D. Joins Foundation as Research Manager
The APBD Research Foundation is delighted to welcome Lindsay Gill, Ph.D. as Research Manager. Dr. Gill joins us following a ten-year career as a neuroscientist and neurotoxicologist with the National Institute for Occupational Safety and Health, a branch of [Read More]
Amber Robertson’s GSD IV Narrative Reaches Millions
We are excited to announce that Amber Robertson's powerful story about her daughter Mia's GSD IV diagnosis has been published on KevinMD.com. Read Amber’s narrative Amber shared, “Even before Mia was born, I could sense that something about her [Read More]