News Releases

Amber Robertson’s GSD IV Narrative Reaches Millions

We are excited to announce that Amber Robertson's powerful story about her daughter Mia's GSD IV diagnosis has been published on KevinMD.com. Read Amber’s narrative Amber shared, “Even before Mia was born, I could sense that something about her [Read More]

July 1st, 2025|

Jeff Cooper’s Story Reaches Millions

We are excited to share that a powerful narrative from Jeff Cooper, who was diagnosed with APBD in 2018 after several years of an MS misdiagnosis, has been published on KevinMD.com. Read Jeff's narrative Jeff shared, “I have always been [Read More]

June 19th, 2025|

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