Board Members, Volunteers, and Part-Time Staff

The APBD Research Foundation is governed by a Board of Directors, assisted by an Advisory Council and committees, which are committed to furthering research on APBD, promoting awareness in the medical community and the public, and supporting patients with the disease.

Board of Directors

  • Jeff Levenson, DDS, Co-President
  • Emil Weiss, Co-Founder and Co-President
  • Deberah Goldman, Vice President
  • Art Glassman, Treasurer
  • Paul Ashley
  • Michael Canmann
  • Susan Coddon
  • Beth Katz
  • Harriet Saxe
  • David Epstein, Director Emeritus
  • Jonathan Fram, Director Emeritus

Honorary President and Founder

  • Gregory Weiss (deceased)

Consultants and Staff

  • Natacha T. Pires, MBBS, MS, Executive Director
  • Gabriel Baril, Website Manager
  • Anessa Kajtazovic, Community Affairs Officer
  • James Meier, Organizational Consultant
  • Sharon Steinberg, Executive Assistant


  • Noelle Lynch
    Student Intern, Columbia University, Dept. of Genetic Counseling
  • Matthew Morgan
    Student Intern, Long Island University, Dept. of Genetic Counseling
  • Alice Tran
    Student Intern, University of Pennsylvania, Master’s Program in Genetic Counseling


  • Robert Dorsky, DMD
    APBDRF’s Pharmaceutical Development Committee
  • Gary Epstein, Google Ad Words Volunteer
  • Leslie S. Leighton, MD, PhD, FACG
    APBDRF’s Pharmaceutical Development Committee
  • Olivia Montana (PROS Foundation)
  • Faye Rosenberg, Volunteer

To contact a specific member of the Board, please e-mail and include their name in the subject of the message.