Board Members, Volunteers, and Part-Time Staff

The APBD Research Foundation is governed by a Board of Directors, assisted by an Advisory Council and committees, which are committed to furthering research on APBD, promoting awareness in the medical community and the public, and supporting patients with the disease.

Board of Directors

  • Jeff Levenson, DDS, Co-President
  • Emil Weiss, Co-Founder and Co-President
  • Deberah Goldman, Vice President
  • Art Glassman, Treasurer
  • Larry Arky, MD
  • Paul Ashley
  • Michael Canmann
  • Susan Coddon
  • Harriet Saxe
  • David Epstein, Director Emeritus
  • Jonathan Fram, Director Emeritus

Honorary President and Other Members

  • Gregory Weiss (deceased)
  • Robert Lipsig (deceased)
  • Robert Zuckerman (deceased)

Consultants and Staff

  • Natacha T. Pires, MBBS, MS, Executive Director
  • Gabriel Baril, Website Manager
  • Anessa Kajtazovic, Community Affairs Officer
  • James Meier, Organizational Consultant
  • Rebecca Reef, MS, Research Coordinator
  • Sharon Steinberg, Executive Assistant

Intern

  • Elizabeth LeBlanc
    Student Intern, Columbia University, Dept. of Genetic Counseling  

Volunteers

  • Jeff Cooper
  • Gary Epstein, Google Ad Words Volunteer
  • Olivia Montano-Tritz (PROS Foundation)
  • Faye Rosenberg
  • Carol Rosenstock

To contact a specific member of the Board, please e-mail info@apbdrf.org and include his/her name in the subject of the message.