Skip to content
Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo
  • Understanding APBD
    • APBD 101
    • Signs and Symptoms
    • Multiple Sclerosis… or APBD?
    • Testing Info
      • Diagnosed by pre-pregnancy screening
    • FAQs
  • About Us
    • Our Story
    • Timeline
    • Board Members
    • Scientific Advisory Board
    • Press
      • News Releases
      • APBD in the media
      • Legislative News
    • Blog
    • Contact us
  • Living with APBD
    • Patient Registry Information
      • Columbia University APBD Registry (CAP)
      • APBDRF and NORD Natural History Study (FAN)
    • Personal Narratives
    • Monthly Phone Chat for APBD patients and caregivers
    • Doctor Database
    • Special Disability Aids
  • Research
    • Our Research Team
    • What We’re Working On
    • Webinars
    • Publications
    • Clinical Trial Considerations
  • Resources
    • Glossary
    • Videos
    • Links
    • Tool Boxes
    • Articles of Interest
    • Powerpoints
    • Newsletter Archive
    • Brochures
    • Volunteer
  • Get involved
    • Volunteer
  • Donate
  • Registry
Registry Donate

Home » Resources » Videos

Videos

New: 2020 APBD Biomarkers Workshop Videos

Video Highlights

APBD PSA 1:36

APBD Webinar Lesson July 2016 11:14

We Are APBD 6:17

Life Through a Lens – Trailer, Documentary 1:08

Scientific Advisory Board 2:40

Guaiacol improves outcomes in adult polyglucosan body disease model 9:53

Personal narratives

Patient ‘s perspective
Symptoms | Diagnosis | Living with APBD

Caregiver/caretaker perspective
Diagnosis | Living with APBD  | APBD and Aqua Therapy

Scientists speak

Scientists | Registry | High throughput screening machine | Pepticom initiative
 

APBD/KINDSight Project

Introduction | Background |Events | APBD Events | APBD/KINDsight® Project | Documentary

NORD

10 Tips for Newly Diagnosed Rare Disease Patients and Families | Rare disease day
 

Other Scientific and Animations

APBD simplified | Rare disease | Rare Repurposing Open Call

Person specific

Art | Sheila | Susan | Chuck

Full length

Susan | Chuck | Richard

Other orphan diseases

Joselin Linder | Ted Harada

Other ultra rare orphan disease

Mission hide and help

  • Video Highlights
  • Personal Narratives
  • Scientists speak
  • APBD/KINDsight®
  • NORD
  • Other Scientific and Animations
  • Person specific
  • Full length
  • Other orphan diseases
  • Other ultra rare orphan disease
  • 2020 APBD Biomarkers Workshop
APBD Research Foundation
info@APBDRF.org  Phone: 646.580.5610  
2257 East 63 Street, Brooklyn, NY 11234. A registered 501(c)3 non-profit organization Contributions are tax deductible to the extent permitted by law.

Please be advised that this web site exists as a source of general information only. Any reference to a product, process, service or company does not constitute an endorsement by the APBD Research Foundation. Please consult your physician before starting a new treatment, diet or fitness program.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
NORD and the NORD logo are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity.