APBDRF takes part in the Ultragenyx Rare Disease Summit as we begin the drug development phase of our research
NORD Breakthrough Summit in Washington, D. C.
Dr. Orhan Akman, Jeff Levenson and Lori Weiss all attended the NORD Breakthrough Summit in Washington, D. C., October 16-17, thanks to grants from NORD and the APBDRF. Dr. Akman presents a poster board abstract on Guaiacol.
$30,000 Challenge grant announced
The Coddon Family Foundation ($20K) and the Levenson-Greenberg Family Foundation ($10K) have generously agreed to match the first $30,000 donated to the 2017 APBD- NYC Marathon Fundraiser.
The funds will be dedicated to bringing clinical trials to APBD and allied disease patients.
We’re Almost There
Please donate any amount and help us take advantage of this doubling opportunity.
Thank you Robert Zuckerman for your wonderful photograph.
2017 APBD- NYC Marathon Fundraisers
More info: http://bit.ly/JojoandChloerun4APBD2017
Hadassah Magazine ad stimulates 100 requests for testing