News Releases

A continuing grant from the CZI Rare As One Network boosts the APBD Research Foundation’s work to expand its reach and impact. Brooklyn, New York – The APBD Research Foundation is honored to receive a third year of funding [Read More]

New York, NY – The APBD Research Foundation is pleased to announce the awarding of a $50,303 research grant to Or Kakhlon, PhD at Hadassah-Hebrew University Medical Center for the advancement of a small molecule compound with potential as a [Read More]

December 21, 2021 On October 28, 2021, the APBD Research Foundation engaged the U.S. Food and Drug Administration (FDA) in a Patient-Led Listening Session to share the burden of APBD and the needs of our community. Click [Read More]

The 2021 APBD Biomarkers Symposium brought together APBD clinicians and researchers, related disease and technology experts, and industry partners to discuss promising biomarker research. Short presentations were followed by interactive discussions with all symposium participants. The symposium goal was to [Read More]

October 25, 2021 We're excited to share this ad that we developed for the Rare New England's (RNE) Annual Conference this past October. Raising the public profile and recognizing the hallmark symptoms of APBD is a crucial facet of [Read More]

September 30, 2021 New York, NY – The APBD Research Foundation is excited to partner with the Association for Glycogen Storage Disease (AGSD) on the  development of healthcare guidelines for APBD and related Type IV Glycogen Storage (GSD [Read More]