Jeff Cooper’s Story Reaches Millions

June 19th, 2025

We are excited to share that a powerful narrative from Jeff Cooper, who was diagnosed with APBD in 2018 after several years of an MS misdiagnosis, has been published on KevinMD.com.

Jeff shared, “I have always been a performer at heart, starting with theater in school. For 28 years, I was a law professor at Indiana University in Indianapolis, and teaching gave me a captive audience. Beyond the classroom, I have always been passionate about music. I play the guitar and sing, and back in the day I was part of a band. I was also a distance runner and dreamed of completing a marathon. But over time, things began to change.” Read more…

We are incredibly grateful to Jeff for courageously sharing his experience. A special thanks to Dr. Kevin Pho, host of KevinMD.com, for providing a platform for this important story. With over 3 million monthly page views and over 250,000 followers on social media, this platform is vital for raising awareness about APBD!

Editor’s Note: A special thanks to Liv Palma, our Columbia University Genetic Counseling Intern, for drawing out this powerful narrative with Jeff Cooper.

 
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Letter to APBD Community