Personal Narratives
Every person living with APBD experiences the disease differently. Here, our community members -- people living with APBD and their significant others -- share their diagnostic journeys, work-arounds, and efforts to find hope through research.
Share Your Story!
Your story, too, could inspire others whose lives have been affected by APBD. Interested in sharing your story? Email Anesa Kajtazovic, our Community Affairs Manager at anesa@apbdrf.org.
Remember: you can also share your story anonymously!
Testimonials
Featured
Videos
Updated: March 2025