Board Members, Volunteers, and Staff

The APBD Research Foundation is governed by a Board of Directors, assisted by an Advisory Council and committees, which are committed to furthering research on APBD, promoting awareness in the medical community and the public, and supporting patients with the disease.

Board of Directors

  • Emil Weiss, MS, Co-Founder and Co-President

  • Jeff Levenson, DDS, Co-President

  • Deberah Goldman, PhD, Vice President

  • Art Glassman, Treasurer

  • Larry Arky, MD

  • Paul Ashley

  • Michael Canmann

  • Susan Coddon

  • Harriet Saxe

Directors Emeriti

  • David Epstein

  • Jonathan Fram

Honorary President and Other Board Members

  • Robert Zuckerman (deceased)

  • Robert Lipsig (deceased)

  • Gregory Weiss (deceased)

Consultants and Staff

  • Natacha T. Pires, MBBS, MS, Executive Director

  • Gabriel Baril, Website Manager

  • Lindsay Gill, Ph.D., Research Manager

  • Anessa Kajtazovic, Community Affairs Officer

  • James Meier, Organizational Consultant

  • Sharon Steinberg, Executive Assistant

Intern

  • Henry Daumeyer

    Student Intern, Columbia University, Dept. of Gen

Volunteers

  • Jeff Cooper

  • Gary Epstein, Google Ad Words Volunteer

  • Olivia Montano-Tritz (PROS Foundation)

  • Rebecca Reef, MS, Research Engagement Volunteer 

  • Faye Rosenberg

  • Carol Rosenstock

To contact a specific member of the Board, please e-mail info@apbdrf.org and include his/her name in the subject of the message.

 

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