Natural History Study

At APBDRF, we believe that every patient’s unique experience holds the key to advancing research and finding a cure for Adult Polyglucosan Body Disease (APBD). By sharing your story, you help accelerate discoveries, shape the design of future clinical trials, and ensure that the voices of patients and families remain at the heart of every step forward. By joining our natural history study, you become an essential part of this progress. Together, we can drive meaningful change and come closer to the answers we urgently need. 

👉See below to learn more about our natural history study and enroll today. Your participation is completely voluntary and confidential.

Duke Natural History Study