Our Mission

We are the only US-based nonprofit supporting people with APBD. As the trusted APBD hub for medical providers, healthcare industry, and APBD families, we are the #1 source for patient information and support through our website, social media, e-newsletters, and patient and caregiver Chat events. Our mission is four-fold:  

  • improve the diagnosis and treatment of APBD

  • support affected individuals and families  

  • increase awareness of APBD among health professionals and the public

  • facilitate the translation of research into treatments and a cure for APBD

 
 
 

About Us