Leave a Legacy That Rewrites the Future of APBD

A gift in your will or estate plan is a meaningful way to support the people and causes that matter most to you.

By including the APBD Research Foundation (Federal Tax ID (EIN): 20-3609790) in your estate plan, your decision will continue creating impact for generations to come. Your legacy gift will help advance research, support therapeutic development, and bring hope to affected families around the world.

Create or Update Your Will for Free

Through our partnership with FreeWill, members of the APBD community and our supporters can create or update a will online, at no cost. The secure online tool guides you through the process step by step and can be completed in as little as 20 minutes.*

There is no obligation to include the APBD Research Foundation in your plans. FreeWill is a resource we are pleased to make available to our community.

*Disclaimer: Please note that FreeWill is not a law firm and cannot provide legal advice, nor can the APBD Research Foundation. We encourage that a lawyer review your will and any other important legal documents FreeWill may generate for you.

Ways to Leave a Legacy

There are several ways to include the APBD Research Foundation in your future plans.
You may choose to:

• Include APBDRF in your will or trust

• Name APBDRF as a beneficiary of a retirement account or IRA

• Name APBDRF as a beneficiary of a life insurance policy, annuity, or other financial account

• Include APBDRF in your Donor Advised Fund

• Leave a specific dollar amount or a percentage of your estate.

You remain in control of your assets during your lifetime and can change your plans whenever your circumstances or wishes change.  

Making a legacy gift to APBD Research Foundation has the following benefits:

• Take advantage of tax laws that help preserve your estate assets.
  A well-designed plan may reduce estate taxes, allowing you to leave more for your beneficiaries.

• Maintain flexibility and control.
  You retain control of your assets during your lifetime and can update your plans as your circumstances or wishes change. 

• Create a lasting legacy.
  Your gift can help advance APBD research and make a difference for individuals and families affected by APBD for generations to come.

A Legacy of Love

The APBD Legacy Giving Program was established through the generosity of Art Glassman, whose late wife, Penny, lived with APBD. A retired estate planning and tax attorney in Minneapolis, Minnesota, Art serves as a Board Member and Treasurer of the APBD Research Foundation.

Art’s devotion to Penny throughout her journey with APBD inspired his commitment to creating a better future for individuals and families affected by this ultra-rare disease.

Considering a Legacy Gift or Updating Your Estate Plan?

Here are a few steps to help you include the APBD Research Foundation in your plans:

1. Involve your family and/or heirs in designing a vision for your legacy gifts.

2. Talk to your financial and legal advisors.

3. Include simple bequest language in your Will or Trust, such as:
   “I hereby give, devise, and bequeath $____or____% of my total estate to APBD Research Foundation, a nonprofit organization located at 2257 East 63 Street, Brooklyn, NY 11234, Federal Tax ID# 20-3609790, for APBD Research Foundation’s general use and purpose*.
   * If you would like to designate funds for a specific purpose, we would be happy to discuss your wishes to ensure we can honor them.

4. Complete beneficiary forms for gifts involving retirement plans or insurance products, including annuities.

5. Let us know about your commitment and if we can welcome you into the APBD Planned Giving program

Have You Already Included APBDRF in Your Plans?

If you have included the APBD Research Foundation in your will or estate plans, we would be honored to know. Please complete the Bequest Intention Form below. (You are not required to disclose the amount of your gift.)