Honoring David Epstein
October 13, 2026
Honoring David Epstein’s Legacy
We are honored to share the story of an extraordinary act of generosity and planning by former Board member David Epstein. David passed away on January 3, 2026.
David's connection to our Foundation’s mission was deeply personal. After several misdiagnoses spanning 13 years, he was diagnosed with APBD in 2011. Determined to make a difference and advance research, he joined our Board of Directors in the Foundation’s early years and later continued his involvement as a Director Emeritus. David was widely respected as a businessman and community volunteer, but he was even more cherished as a devoted husband, father, uncle, grandfather, and friend. Those who knew David remember not only his many contributions, but also his kindness, integrity, and generosity of spirit.
David was committed to finding a treatment for APBD, even when he recognized it would come too late to benefit him. When David was putting his affairs in order, he left a legacy gift through his IRA to the APBD Research Foundation. David’s decision to invest in treatment options for patients and families impacted by APBD and other forms of GSD IV will benefit future generations.
Harriet Saxe, a Foundation Board member, shared, “David was a visionary leader, rare disease advocate, and caring friend. We are profoundly grateful for his kindness, foresight, and belief in what is possible. His legacy will live on through the patients and families who benefit from it in the years ahead.”
Thank you, David!
