Carol Rosenstock Shares Her APBD Journey with the Jewish Standard
Oct. 20, 2025
Carol Rosenstock recently opened up about her journey from being diagnosed with MS to receiving an APBD diagnosis in the Jewish Standard.
Working with her friend Beth Chananie, an editor for the newspaper, and the Foundation team, Carol has made a way for greater awareness and understanding. Following publication, a physician contacted the publisher to request an additional copy of the issue; an encouraging sign that the piece is helping spread the word about APBD.
Read Carol’s story in
The Jewish Standard (page 54)
Carol shared, ”For the last 20 years, in jobs at Boston area universities and hospitals, I worked with scientists to support their research, primarily in life sciences and mental and behavioral health. I stopped working in 2024, two years after I was diagnosed with APBD. Now I’m supporting research on a more personal level, as a patient, by participating in a natural history study and several biomarkers development studies. I volunteer with the Foundation by contributing to the newsletter.”
Do you have a contact at a local paper or magazine that could help write about APBD and raise awareness? We'd love to hear from you and help -- write to Anesa Kajtazovic at anesa@apbdrf.org.
Editor’s Note: We’re thankful for Carol and the Jewish Standard team for helping raise the public profile and understanding of APBD.