2024 Virtual APBD Scientific & Community Conference is a Success!
September 20th, 2024
On September 18-19, over 200 attendees joined the 2024 APBD Scientific & Community Conference. The virtual event brought together stakeholders in the APBD community – researchers, health care providers, industry partners, and individuals and family members impacted by APBD – to connect, share, and accelerate APBD and allied diseases research.
During the two-day event, attendees heard from clinicians and researchers who discussed advances in foundational science, therapeutic development, and clinical research. Patients and caregivers shared their lived experiences, while community members highlighted areas of much-needed collaboration.
Our Conference featured 40 guest speakers, including researchers, clinicians, patients, caregivers, advocates, industry partners, and regulatory agency representatives.
We had 214 community members — from all over the world, including Argentina, Australia, Canada, India, Israel, Italy, Netherlands, Nigeria, Pakistan, Portugal, South Africa, Spain, Turkey, UK, and the US – joining us.
The conference brought together a diverse group of attendees, including researchers, healthcare providers, industry partners, and individuals and family members impacted by APBD. Many first-time attendees joined our growing APBD and allied disease community, demonstrating our collective strength and commitment to advancing knowledge and support to advance APBD and allied disease research.
Thank You to our Conference Planning Committee
Felix Nitschke, PhD | UT Southwestern Medical Center
APBDRF’s Scientific & Medical Advisory Board Co-Chair
Jennifer Orthmann-Murphy, MD, PhD | University of Pennsylvania
APBDRF’s Scientific & Medical Advisory Board Co-Chair
Wyatt Yue, PhD | Newcastle University
APBDRF’s Scientific & Medical Advisory Board Member
Nicolas Abreu, MD | NYU Langone Medical Center
Lawrence Arky, MD, Person with APBD
Alan Beletz, Person with APBD
Richie Goldstein, Person with APBD
Ora Karp Gordon, MD, MS, FACMGG | Providence Center for Clinical Genetics and Genomics
Jeff Katz, Person with APBD
Rebecca Koch, PhD, RDN, LDN | Duke University Medical Center
