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Caregiver/Family Chat Group

October 14th, 2020|

We hear you, and we are here for you. Announcing the Caregiver/Family Chat Group If APBD touches your life through a family member or loved one, whether you are a hands-on caregiver or within the circle of emotional support, [...]

Why Sheri Loves AmazonSmile!

September 27th, 2020|

"It's so easy!" shared Sheri, a member of our APBD Chat group, about shopping on AmazonSmile. "I buy all kinds of stuff and everything I buy donates to the APBD Research Foundation.  I even bought an entire office set, including [...]

Hosting a Facebook Fundraiser for APBD Research

August 3rd, 2020|

By Susan Coddon Earlier this summer, I hosted a Facebook fundraiser for my birthday and raised $671 to advance APBD research. I was so touched to see my family and friends (some from as far back as high school) step [...]

COVID-19 Resources

March 27th, 2020|

A list of resources, information and activities.  Click on the text of any of the items listed to go to the website. Government Resources: CDC (Center for Disease Control) WHO (World Health Organization) Rare Disease Organizations Resources: Global Genes NORD [...]

Exciting Announcement for the APBD Community

March 21st, 2020|

Dear Patient Community, Family Members, Cheerleaders, Donors, Researchers and Clinicians: Today is a special day. We have important news to share with you. We are excited to announce that we are one of 30 recipients of a $450,000, two-year Rare [...]

2018 Million Dollar Ride Ride

July 26th, 2018|

The APBD Community said, "Let's Roll!" to the Million Dollar Bike Ride for rare disease research. Some of the 36 members of our "Tour de Friends" team rode bikes on the official course in Philadelphia, and some rode virtually in [...]

The Benefits of ‘Kindsight’

February 1st, 2018|

THE JEWISH DAILY FORWARD The Benefits of ‘Kindsight’ Read Article: http://blogs.forward.com/the-arty-semite/192725/the-benefits-of-kindsight/#ixzz33fwCE7fM