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Foundation’s Biomarker Workshop Spurs Collaboration and Hope

June 23rd, 2020|

On June 22, the Adult Polyglucosan Body Disease Research Foundation hosted its first Biomarker Workshop to facilitate a vigorous exchange among researchers and patient advocates regarding potential biomarkers for drug discovery and development targeting APBD. The Workshop -- hosted on [...]

COVID-19 Resources

March 27th, 2020|

A list of resources, information and activities.  Click on the text of any of the items listed to go to the website. Government Resources: CDC (Center for Disease Control) WHO (World Health Organization) Rare Disease Organizations Resources: Global Genes NORD [...]

Exciting Announcement for the APBD Community

March 21st, 2020|

Dear Patient Community, Family Members, Cheerleaders, Donors, Researchers and Clinicians: Today is a special day. We have important news to share with you. We are excited to announce that we are one of 30 recipients of a $450,000, two-year Rare [...]

2018 Million Dollar Ride Ride

July 26th, 2018|

The APBD Community said, "Let's Roll!" to the Million Dollar Bike Ride for rare disease research. Some of the 36 members of our "Tour de Friends" team rode bikes on the official course in Philadelphia, and some rode virtually in [...]

The Benefits of ‘Kindsight’

February 1st, 2018|

THE JEWISH DAILY FORWARD The Benefits of ‘Kindsight’ Read Article: http://blogs.forward.com/the-arty-semite/192725/the-benefits-of-kindsight/#ixzz33fwCE7fM