Together with his son, Alan runs an avant-garde, highly atmospheric, candle-making bar named Wax + Wine, where customers sip wine while pouring aromatic candles. Alan gets up early and drives himself to work 5 days a week, but he describes that he must deal with fatigue which hits during the day as well as leg weakness, leg stiffness, balance problems, and foot numbness. He combats his loss of energy by taking a prescription drug that gives him temporary relief from the symptom. Alan shares, “This is necessary for me and most important in the morning.” He also naps mid-day. He has not found anything to relieve his symptoms of peripheral neuropathy.
Independence and quality of life are tremendously important to Alan, so he and his wife have made several changes and adopted workarounds.
For one, they sold their historic home with its winding staircase, and they now reside in a city apartment. Alan shares, “We absolutely miss our beautiful home. But being dealt my situation, this apartment is fantastic.”