Barbara Tamir Shares Her Diagnostic Journey with AMI Magazine
Jan. 21, 2026
We're excited to share that the latest edition of Ami Magazine's Ami Living Supplement features Barbara Tamir's diagnostic journey (using the name Bina T.). Barbara worked on this narrative with her friend and writer Devorie Kreiman. Together, they focused the storyline on how hard it is to get a rare disease diagnosis and on how becoming religious helped Barbara to handle the diagnosis.
In the article, Barbara shared, "In 2015, when I was in my mid-50s, I started having some issues with bladder control, which was a bit unsettling. The doctor told me it’s not uncommon for women who’ve had a bunch of children to suffer from it, and it could also be a function of aging. I did kegel exercises, and, for the most part, just learned to live with a dysfunctional bladder. I didn’t realize that it was a marker of something more ominous." Read the article here
Editor’s Note: We are thankful to the writers and editors at “Ami Magazine” for putting the spotlight on APBD with Barbara’s personal narrative. Understanding the rare disease journey, recognizing the hallmarks of APBD, and connecting individuals and families affected with crucial resources are important aspects of this work to make APBD treatments a reality. Our thanks also to Barbara for stepping out and sharing her journey!