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Board Members, Volunteers, and Staff

Scientific and Medical Advisory Board

Report: 15 Years of Progress

Newsletter Archive

Signs and Symptoms

APBD Symptom Checker

APBD and GSD IV Guideline

Newly Diagnosed?

Health Care Providers Directory

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Natural History Study

Patient Registry

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State of the Science

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Interested in Volunteering?

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NORD Living Rare Study

May 1

Written By Gabriel Baril

Gabriel Baril

Patient Registry

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