Show biz photographer fights rare genetic disease Despite his rare genetic disease, Robert Zuckerman still delights in his vocation, photography. http://njjewishnews.com/article/37996/hollywood-just-dropped-me#.Wtf5ZiIpDYU
https://www.jewishlinknj.com/monthly-sections/health-link-new/24323-documentary-at-jcc-reelabilities-film-festival-to-shed-light-on-jewish-genetic-disorder
APBDRF Board Member David Epstein has been paired with a 3rd year medical student from the University of Maryland. In a program sponsored by Global Genes®, medical students are paired with rare disease patients in an effort to build the [Read More]
Thank you for your interest in joining the APBD Tour De Friends Team in the University of Pennsylvania’s Million Dollar Bike Ride on May 20 to show your support for rare disease research. There are 7,000 rare diseases & disorders [Read More]
Help us, help you! Dear APBD Patient (with confirmed diagnosis): The Foundation can better target research if we hear from the wide APBD community. Recently, we have heard from some of you on APBD diets, possible new health problems, misdiagnosis [Read More]
THE JEWISH DAILY FORWARD The Benefits of ‘Kindsight’ Read Article: http://blogs.forward.com/the-arty-semite/192725/the-benefits-of-kindsight/#ixzz33fwCE7fM
http://www.hadassahmagazine.org/2018/01/29/celebrating-100th-birthdays/
Greetings from the ODC! Registration for the 2018 5th Annual Million Dollar Bike Ride is now open! Please follow this link to register for the ride, which takes place on Sunday, May 20, 2018. Feel free to share the above [Read More]