APBDRF Board Member David Epstein has been paired with a 3rd year medical student from the University of Maryland. In a program sponsored by Global Genes®, medical students are paired with rare disease patients in an effort to build the bridge of understanding and compassion among medical professionals. Global Genes® is conducting the third year of the David R. Cox Scholarship for Rare Compassion. This scholarship program is an opportunity for emerging medical students to connect to the rare disease community with the goal of developing and understanding compassion for the challenges and lifestyles that patients diagnosed with a rare disease are faced with everyday. It is an opportunity for the rare disease patient to share stories and raise awareness of his/her rare disease.
David provided information on his experiences with APBD, his ultimate diagnosis after more than 10 years of symptoms, and work of the APBDRF.
Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®.