Thank you for your interest in joining the APBD Tour De Friends Team in the University of Pennsylvania’s Million Dollar Bike Ride on May 20 to show your support for rare disease research. There are 7,000 rare diseases & disorders that combined affect 30 million Americans.
APBD is a rare, inherited disorder of metabolism that devastates the nervous system. It gives no indication of its presence in infancy or childhood, but it strikes adults when they’re in the prime of life — as young as 35. Most often, sufferers are told they have MS, ALS, peripheral neuropathy, and other severe degenerative ailments which have similar symptoms. At the current time, there is no treatment or cure.
We have two goals for the Penn Million Dollar Bike Ride:
- • Form a team of at least 20 bike riders (Bike riders don’t need to raise funds!)
- • Raise $50,000, which will be matched dollar-for-dollar by the Penn Medicine Orphan Disease Center to fund research to find a treatment and cure for APBD.
About the Ride
The Million Dollar Bike Ride offers a choice of three scenic rides of 13, 34, or 72 miles starting in the city, and ranging across the Greater Philadelphia region. The routes will start and finish at the University of Pennsylvania campus in downtown Philadelphia. The roads will be completely shut down for exit from the city, up until the MLK riverdrive. The return will stay on the river drives almost all the way until the South Street bridge, which will bring us over to the finish with very little time on streets with traffic for the short route.
For more information about the routes, visit:
The first 20 bike riders to register for the APBD Tour de Friends team are eligible to be reimbursed the $60 registration fee up until April 1, thanks to a generous donor. After you register, email firstname.lastname@example.org to find out if you are in the first 20 registrants for reimbursement.
Click on the box below to register as a Non-Fundraiser, and make sure to sign up to ride with the APBD Tour de Friends team.
To register click on the banner:
or click on this hyperlink:
If you are interested in donating to help us meet our goal of raising $50,000, visit our fundraising page: http://bit.ly/2CJmLjd