Record-Breaking Success: APBD Tour de Friends Rally for Research Raises $178,000
Gabriel Baril Gabriel Baril

Record-Breaking Success: APBD Tour de Friends Rally for Research Raises $178,000

The 2025 APBD Tour de Friends Rally for Research team raised a record-breaking $178,404 with the support of 287 donors. This achievement was made possible by our Board of Directors’ $50,000 match and Dr. Ora Gordon’s $36,000 match. We also acknowledge our peer-to-peer fundraising team leaders: Kathy Arky, Melanie Robinson, Faye Rosenberg, Alan Rosenthal and Robin Knoll, Carol Rosenstock, and Sharon Young.

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Lindsay Gill, Ph.D. Joins Foundation as Research Manager
Gabriel Baril Gabriel Baril

Lindsay Gill, Ph.D. Joins Foundation as Research Manager

The APBD Research Foundation is delighted to welcome Lindsay Gill, Ph.D. as Research Manager. Dr. Gill joins us following a ten-year career as a neuroscientist and neurotoxicologist with the National Institute for Occupational Safety and Health, a branch of the U.S. Centers for Disease Control and Prevention.

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Letter to APBD Community
Gabriel Baril Gabriel Baril

Letter to APBD Community

In the May 2025 newsletter, we highlight two powerful examples of momentum in research and advocacy. 

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Navigating a Presymptomatic Diagnosis
Gabriel Baril Gabriel Baril

Navigating a Presymptomatic Diagnosis

Due to the increased availability of genetic testing, including carrier screening, several members of our community have received a genetic, but presymptomatic, diagnosis of APBD.

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Key Takeaways from our Collaboration with Costello Medical
Gabriel Baril Gabriel Baril

Key Takeaways from our Collaboration with Costello Medical

We recently wrapped up a powerful collaboration with Costello Medical — through the Pro Bono Call for Rare Disease Organizations — that supported the development of critical tools needed to unite the APBD and the broader GSD IV community.

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