CZI’s Cycle 1 Rare As One Impact Report Features APBDRF’s Work, Alongside Peers, to Advance Rare Disease Research
January 18th, 2025
Click here to read the Report. Check out pages 16-17 to read
APBDRF’s key achievements during the grant.
We are excited to share the recently released Chan Zuckerberg Initiative (CZI) Rare As One Impact Report. The report highlights the accomplishments of our Foundation and 29 other Cycle One rare disease organizations over a three-year grant period that ended in 2022.
CZI has since expanded the Rare As One Network to include 94 patient-lead rare disease organizations globally. Our Foundation, although our funding cycle concluded in 2022, continues to be an active participant of the RAO network.
As APBDRF co-president Jeff Levenson, DDS shared in the report, “Our biggest gains came from connections made during our Scientific and Community Conferences and our Biomarkers Workshops, as well as [collaborative research grant] applications. The RAO grant funding, educational programs, and expert support, along with the camaraderie of the other grantees, also helped us focus on what are now promising therapeutic initiatives.”
