We are excited to share that Melanie Robinson’s narrative on caregiving for her mother, Ginny, who was diagnosed with APBD in 2018, has been published on KevinMD.com.
Melanie shared, “Before her diagnosis, my mom was extremely active and healthy… So in 2013, when she began experiencing symptoms like incontinence and difficulties with walking, we knew that something wasn’t right.”
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We are incredibly grateful to Melanie and Ginny for sharing their APBD journey as mother and daughter. A special thanks to Dr. Kevin Pho, host of KevinMD.com, for providing a platform for this powerful story. With over 3 million monthly page views and over 250,000 followers on social media, this platform is vital for raising awareness about APBD!
Editor’s Note: A special thanks to Liv Palma, our Genetic Counseling Intern from Columbia University’s Department of Genetic Counseling, for drawing out this powerful narrative with Melanie and Ginny.