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So far webmaster has created 13 blog entries.

Gregory Weiss (1947 – 2018)

Gregory Weiss (1947 - 2018) It is with very deep regret that we inform you of the passing today (June 25, 2018) of Gregory Weiss, Founder and President of APBDRF. Make a Memorial Donation I met Gregory thirteen [Read More]

June 25th, 2018|

Life Through a Lens – UK premiere screening

Dr. Wyatt Yue will introduce the @APBDRF documentary “Life Through a Lens“ at our UK premiere screening at the Oxford International Film Festival on Sunday, May 13th 6pm http://www.oxiff.com/life-through-a-lens

May 1st, 2018|

New Jersey Jewish News: ‘Hollywood just dropped me’

Show biz photographer fights rare genetic disease Despite his rare genetic disease, Robert Zuckerman still delights in his vocation, photography. http://njjewishnews.com/article/37996/hollywood-just-dropped-me#.Wtf5ZiIpDYU  

April 18th, 2018|

Global Genes – Medical Student Pairing

APBDRF Board Member David Epstein has been paired with a 3rd year medical student from the University of Maryland. In a program sponsored by Global Genes®, medical students are paired with rare disease patients in an effort to build the [Read More]

March 15th, 2018|

We need your input to target research

Help us, help you! Dear APBD Patient (with confirmed diagnosis): The Foundation can better target research if we hear from the wide APBD community. Recently, we have heard from some of you on APBD diets, possible new health problems, misdiagnosis [Read More]

February 2nd, 2018|

The Benefits of ‘Kindsight’

THE JEWISH DAILY FORWARD The Benefits of ‘Kindsight’ Read Article: http://blogs.forward.com/the-arty-semite/192725/the-benefits-of-kindsight/#ixzz33fwCE7fM

February 1st, 2018|
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