News Releases
Global Genes – Medical Student Pairing
APBDRF Board Member David Epstein has been paired with a 3rd year medical student from the University of Maryland. In a program sponsored by Global Genes®, medical students are paired with rare disease patients in an effort to build the [Read More]
Join over 500 cyclists and volunteers to bike ride in support of Rare Disease Research
Thank you for your interest in joining the APBD Tour De Friends Team in the University of Pennsylvania’s Million Dollar Bike Ride on May 20 to show your support for rare disease research. There are 7,000 rare diseases & disorders [Read More]
We need your input to target research
Help us, help you! Dear APBD Patient (with confirmed diagnosis): The Foundation can better target research if we hear from the wide APBD community. Recently, we have heard from some of you on APBD diets, possible new health problems, misdiagnosis [Read More]
We need you to ride with us for APBD research on May 20th in Philidelphia
Greetings from the ODC! Registration for the 2018 5th Annual Million Dollar Bike Ride is now open! Please follow this link to register for the ride, which takes place on Sunday, May 20, 2018. Feel free to share the above [Read More]