News Releases
Exciting Announcement for the APBD Community
Dear Patient Community, Family Members, Cheerleaders, Donors, Researchers and Clinicians: Today is a special day. We have important news to share with you. We are excited to announce that we are one of 30 recipients of a $450,000, two-year Rare [...]
The Orphan Disease Center Awards Two Research Grants for Adult Polyglucosan Body Disease (APBD)
The APBD Research Foundation and the Orphan Disease Center, part of the Perelman School of Medicine at the University of Pennsylvania, are pleased to announce the recent winners of two ‘Million Dollar Bike Ride’ research grants. These important research grants will [...]
Congratulations from Disorder: The Rare Disease Film Festival 2020
We are honored to have been chosen to participate in this year’s Rare Disease Film Festival to take place May 17th and 18th in New York City*. There were more than a dozen sponsors in 2019, including NORD, Global Genes, [...]
Pedaling for Progress in APBD Research
The APBD community said, “Let’s Roll!” to the Penn Medicine Orphan Disease Center’s Million Dollar Bike Ride for rare disease research again this year. Our 33-member team, the “Tour de Friends,” participated from locations all over the country in their neighborhoods and in [...]
Leading Scientists and Physicians in Neurology Report on Research Progress at 13th Foundation Scientific Advisory Board Meeting
Leading Scientists and Physicians in Neurology Report on Research Progress at 13th Foundation Scientific Advisory Board Meeting The Foundation’s Scientific Advisory Board (SAB) Meeting held on May 5, 2019 brought together an international research team to discuss the latest advances [...]
Foundation Interacts with Neurologists at American Academy of Neurology Meeting
Foundation Interacts with Neurologists at American Academy of Neurology Meeting For the first time, the APBD Research Foundation had an exhibit booth at the American Academy of Neurology (AAN) meeting held this past May in Philadelphia. Each year the AAN [...]