News Releases
2024 Virtual APBD Scientific & Community Conference is a Success!
On September 18-19, over 200 attendees joined the 2024 APBD Scientific & Community Conference. The virtual event brought together stakeholders in the APBD community – researchers, health care providers, industry partners, and individuals and family members impacted by APBD [Read More]
APBD Research Foundation Receives Crucial Support from Costello Medical to Build Bridges Between the APBD and GSD IV Communities
The APBD Research Foundation is excited to announce a new collaboration with Costello Medical, Inc., following the Foundation’s successful application to Costello Medical’s pro bono project initiative for Rare Disease organizations. With Costello Medical’s support, we will develop a comprehensive [Read More]
Meet Becca Reef, Our Newest Team Member!
The APBD Research Foundation is delighted to introduce our newest team member, Becca Reef, MS, who has joined us as our part-time Science Coordinator. Growing up just outside of Boston, Massachusetts, Becca was inspired to focus on making the [Read More]
APBD Research Funding Opportunity Through UPenn’s Million Dollar Bike Ride Pilot Grant Program
The APBD Research Foundation, in partnership with the Orphan Disease Center (ODC) at the University of Pennsylvania, is pleased to announce the launch of the 2024 Million Dollar Bike Ride (MDBR) Pilot Grant Program. We are honored to [Read More]
Foundation to Host APBD Scientific and Community Conference
We are excited to share that we are hosting our virtual APBD Scientific and Community Conference on September 18-19, 2024. Join us as we bring together stakeholders in the APBD community – researchers, health care providers, industry partners, and individuals and [Read More]
APBD Tour de Friends Team Raises a Record-Breaking $134,000 During the 2024 Million Dollar Bike Ride For Rare Disease Research
On June 8th, our APBD Tour de Friends team gathered on the ground in Philadelphia, biking, walking, and scootering, while over 271 virtual participants and donors joined in support from across the country. Together, we soared to new heights [Read More]