News Releases
Foundation’s Biomarker Workshop Spurs Collaboration and Hope
On June 22, the Adult Polyglucosan Body Disease Research Foundation hosted its first Biomarker Workshop to facilitate a vigorous exchange among researchers and patient advocates regarding potential biomarkers for drug discovery and development targeting APBD. The Workshop -- hosted [...]
APBD Documentary Premieres at the 2020 Berkshire Jewish Film Festival
We are excited to have “Life Through a Lens” featured at the Berkshire Jewish Film Festival on July 6. Additionally, we are honored to have Dr. Edwin H. Kolodny -- Chair of our Scientific Advisory Board -- conduct a TalkBack [...]
Thank you for making #ShowYourStripes a great success this year in honor of Rare Disease Day!
Thank you for making #ShowYourStripes a great success this year in honor of Rare Disease Day! This past week, our APBD community did #ShowYourStripes and more than 12 people shared a quote about their hopes and dreams for APBD research [...]
COVID-19 Resources
A list of resources, information and activities. Click on the text of any of the items listed to go to the website. Government Resources: CDC (Center for Disease Control) WHO (World Health Organization) Rare Disease Organizations Resources: Global Genes NORD [...]
Exciting Announcement for the APBD Community
Dear Patient Community, Family Members, Cheerleaders, Donors, Researchers and Clinicians: Today is a special day. We have important news to share with you. We are excited to announce that we are one of 30 recipients of a $450,000, two-year Rare [...]
The Orphan Disease Center Awards Two Research Grants for Adult Polyglucosan Body Disease (APBD)
The APBD Research Foundation and the Orphan Disease Center, part of the Perelman School of Medicine at the University of Pennsylvania, are pleased to announce the recent winners of two ‘Million Dollar Bike Ride’ research grants. These important research grants will [...]