Other orphan diseases
Stopping a deadly genetic disorder in its 4th generation: Joselin Linder at TEDxGowanus 15:02
Joselin Linder and her family share a deadly genetic disorder. A woman with a genetic defect so rare that it doesn’t have a name yet, 42-year-old Joselin Linder is a carrier of what’s known as an “orphan gene,” a genetic defect that could have fatal consequences.
Exchanging vows while battling ALS 2:32
Ted Harada made medical history and brought hope to others who have been diagnosed with a terminal illness.