October 2025 Newsletter — Participate in the “Living Rare Study,” Carol Rosenstock shares her APBD journey…
Table of Contents
Participate in NORD’s Living Rare Study
Foundation's Executive Director attends NORD’s Breakthrough Summit
Foundation's Research Manager attends n-Lorem Foundation’s Nano-rare Patient Colloquium
Carol Rosenstock shares her APBD journey in the Jewish Standard
Laurence Letreguilly shares her family’s GSD IV journey
Save the Date: Dec. 2 is #GivingTuesday
Upcoming Chat events for patients and caregivers
Make a life-changing legacy gift
