November 2025 Newsletter — GSD IV Biobank launch; how to create your CRID

Written by Gabriel Baril

Table of Contents

  • Thank you for being a part of our community

  • Foundation launches GSD IV Biobank

  • Why you should create your “Clinical Research ID”

  • Give and double your impact on #GivingTuesday

  • Upcoming Chat events for patients and caregivers

  • Make a life-changing legacy gift

Click here to view our November 2025 Newsletter

 
 

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Gabriel Baril
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December 2025 Newsletter — 34,000 genetic prevalence of GSD IV preprint; Dr. Matthew Gentry receives Rare Disease Scholar Award
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October 2025 Newsletter — Participate in the “Living Rare Study,” Carol Rosenstock shares her APBD journey…