February 2025 Newsletter — Recognizing Rare Disease Day; biomarker studies; and more!; …

Written By Gabriel Baril

Table of Contents

  • Raising Awareness on Rare Disease Day

  • Innovative MRI Biomarker Study Still Needs a Few More Patients

  • From MS to APBD--One Patient’s Diagnostic Journey

  • Understanding Carrier Screening: A Key to APBD Genetics

  • NORD’s “Rare Disease Drug Development” Resource

  • Upcoming Patient and Caregiver Chats 

  • Plan Your Legacy in 2025

 
 

About US

Gabriel Baril
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March 2025 Newsletter —International Patient Chat; Research Highlights; … and more!
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January 2025 Newsletter — APBD research grants awarded; join our Rare Disease Day efforts; …