March 2025 Newsletter —International Patient Chat; Research Highlights; … and more!

Table of Contents

  • Connecting our Global APBD Community: A Special Patient Chat

  • Amber Robertson Shares Her Family's Journey with Childhood-Onset GSD IV

  • APBD Biomarker Workshop Engages Research Community

  • Empowering Patients: Key Takeaways from ASGCT’s Summit

  • Upcoming Patient and Caregiver Chats

  • Supporting Your #1 Cause

 
 
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April 2025 Newsletter —Rallying for Research, COMBINEDBrain partnership…and more!

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February 2025 Newsletter — Recognizing Rare Disease Day; biomarker studies; and more!; …