January 2025 Newsletter — APBD research grants awarded; join our Rare Disease Day efforts; …

Table of Contents

  • Our 2024 Year-End Giving Campaign is a Success!

  • Million Dollar Bike Ride Grants Awarded for APBD Research

  • Innovative MRI Biomarker Study Still Needs Three More Patients

  • CZI's Report Highlights Our Impact in Advancing Rare Disease Research 

  • Join Our Rare Disease Day Efforts!

  • Take Our Two-Minute Survey 

  • Upcoming Patient and Caregiver Chats 

  • Plan Your Legacy in 2025

 
 
Previous
Previous

February 2025 Newsletter — Recognizing Rare Disease Day; biomarker studies; and more!; …

Next
Next

February 2023 Newsletter — Rare Disease Day; a Mother’s Perspective…and more!