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Jeff Cooper’s Story Reaches Millions

We are excited to share that a powerful narrative from Jeff Cooper, who was diagnosed with APBD in 2018 after several years of an MS misdiagnosis, has been published on KevinMD.com. Read Jeff's narrative Jeff shared, “I have always been [Read More]

June 19th, 2025|

Letter to APBD Community

Dear Friend, In the May 2025 newsletter, we highlight two powerful examples of momentum in research and advocacy.  First, we explore the groundbreaking personalized treatment advances led by the n-Lorem Foundation. Although this therapy (which is still in development) [Read More]

May 23rd, 2025|

Navigating a Presymptomatic Diagnosis

By Liv Palma May 22, 2025 What is a presymptomatic diagnosis? Due to the increased availability of genetic testing, including carrier screening, several members of our community have received a genetic, but presymptomatic, diagnosis of APBD. That is, they [Read More]

May 23rd, 2025|

Q&A with Or Kakhlon, PhD

Dr. Or Kakhlon is an associate professor in the Department of Neurology at Hadassah-Hebrew University Medical Center and a long-standing member of the APBD Research Foundation’s Scientific Advisory Board. He has been an important contributor to APBD research, co-authoring [Read More]

December 14th, 2024|
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