Dedicated to finding a cure for Adult Polyglucosan Body Disease (APBD), while improving the lives of those affected Providing Support Finding Answers Building Community Featured ContentHave you been recently diagnosed? Did you know that misdiagnosis is a common part of the APBD journey?Managing APBD requires working with a team of healthcare professionalsFeatured Research Highlights What's New Featured Oct 27, 2025 Foundation Attends n-Lorem Foundation’s Third Annual Nano-rare Patient Colloquium Oct 27, 2025 Oct 27, 2025 Oct 24, 2025 Foundation’s Executive Director Represents the APBD Community at NORD’s 2025 Breakthrough Summit Oct 24, 2025 Oct 24, 2025 Oct 22, 2025 Participate in the Living Rare Study: Share Your Experience, Help Shape the Future Oct 22, 2025 Oct 22, 2025 Oct 20, 2025 Carol Rosenstock Shares Her APBD Journey with the Jewish Standard Oct 20, 2025 Oct 20, 2025 Check out more Foundation News… Upcoming Events Patient Chat Join us on the fourth Wednesday of every monthMore info Caregiver/ Family Chat Join us on the second Thursday of every monthMore info Past Events APBD Tour de Friends Rally for Research More info Rare Disease Day More info Scientific Conferences More info
