July 2025 Newsletter — New addition to our team, updated prevalence estimates…and more!

Written by Gabriel Baril

Table of Contents

  • Tour de Friends Rally for Research Fundraiser Surpasses Goal

  • Welcoming Dr. Lindsay Gill, Our New Research Manager

  • Golden Heart Flower Starts Phase I Clinical Trial in Europe

  • New Estimate: 34,000 People Worldwide Could Have GBE1-Related Diseases

  • Upcoming Chats for Patients and Caregivers 

  • Create Your Legacy with FreeWill

Click here to view our July 2025 Newsletter

 
 

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Gabriel Baril
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