July 2025 Newsletter — New addition to our team, updated prevalence estimates…and more!
Table of Contents
Tour de Friends Rally for Research Fundraiser Surpasses Goal
Welcoming Dr. Lindsay Gill, Our New Research Manager
Golden Heart Flower Starts Phase I Clinical Trial in Europe
New Estimate: 34,000 People Worldwide Could Have GBE1-Related Diseases
Upcoming Chats for Patients and Caregivers
Create Your Legacy with FreeWill
