Dedicated to finding a cure for Adult Polyglucosan Body Disease (APBD), while improving the lives of those affected Providing Support Finding Answers Building Community Featured ContentMissed a newsletter? Check out our Newsletter ArchiveHave you been recently diagnosed? Did you know that misdiagnosis is a common part of the APBD journey?Managing APBD requires working with a team of healthcare professionalsFeatured Research Highlights What's New Featured Apr 24, 2026 Foundation Submits Public Comment to the FDA on the Plausible Mechanism Framework for Accelerating Individualized Therapy Development for Rare Diseases Apr 24, 2026 Apr 24, 2026 Apr 21, 2026 JUST PUBLISHED: New Study Highlights That Over 34,000 People Worldwide Are Affected by APBD and Other Forms of GSD IV Apr 21, 2026 Apr 21, 2026 Apr 6, 2026 Advancing APBD Research Has Never Been More Urgent or More Promising Apr 6, 2026 Apr 6, 2026 Apr 6, 2026 We Need You for the APBDRF Drug Repurposing Study! Apr 6, 2026 Apr 6, 2026 Check out more Foundation News… Check out more Foundation News… Upcoming Events Patient Chat Join us on the fourth Wednesday of every monthMore info Caregiver/ Family Chat Join us on the second Thursday of every monthMore info Past Events APBD Tour de Friends Rally for Research More info Rare Disease Day More info Scientific Conferences More info
