Dedicated to finding a cure for Adult Polyglucosan Body Disease (APBD), while improving the lives of those affected Providing Support Finding Answers Building Community Featured ContentHave you been recently diagnosed? Did you know that misdiagnosis is a common part of the APBD journey?Managing APBD requires working with a team of healthcare professionalsFeatured Research Highlights What's New Featured Dec 18, 2025 Rare Genomes Project Researchers Update the Global Genetic Prevalence of GBE1-related Diseases to 34,000 Dec 18, 2025 Dec 18, 2025 Dec 6, 2025 Matthew Gentry, PhD Receives Oxford-Harrington Rare Disease Centre’s 2025 Rare Disease Scholar Award to Advance Enzyme Therapy for Neurological Glycogen Storage Diseases Dec 6, 2025 Dec 6, 2025 Nov 19, 2025 Foundation Partners with COMBINEDBrain to Launch GSD IV BioBank Nov 19, 2025 Nov 19, 2025 Nov 13, 2025 Why You Should Get a CRID - Clinical Research ID? Nov 13, 2025 Nov 13, 2025 Check out more Foundation News… Upcoming Events Patient Chat Join us on the fourth Wednesday of every monthMore info Caregiver/ Family Chat Join us on the second Thursday of every monthMore info Past Events APBD Tour de Friends Rally for Research More info Rare Disease Day More info Scientific Conferences More info
