August 2017
Patient Ronson Akina was featured in the nightly news on Hawaiian TV station KGMB. As a result of the coverage of his symptoms, the foundation was flooded with requests to obtain the APBD in-home saliva test kit.
July 2017
Mishpacha’s Family First magazine on Orphan Diseases
Jewish Orphan Diseases
Family First Magazine 20170718 Orphan Deseases
© Mishpacha Magazine Inc. All rights reserved
Reprinted with permission of Mishpacha Magazine
May 2017
Jewish Exponent
Riders Clock 12 Miles to Reach a $100,000 Goal
http://jewishexponent.com/2017/05/24/riders-clock-12-miles-reach-100000-goal
April 2017
Penn Medicine Orphan Disease Center Newsletter
Orphan Disease Center Newsletter