August 2017
Patient Ronson Akina was featured in the nightly news on Hawaiian TV station KGMB. As a result of the coverage of his symptoms, the foundation was flooded with requests to obtain the APBD in-home saliva test kit.

July 2017
Mishpacha’s Family First magazine on Orphan Diseases
Jewish Orphan Diseases

Family First Magazine 20170718 Orphan Deseases

© Mishpacha Magazine Inc. All rights reserved
Reprinted with permission of Mishpacha Magazine

May 2017

Jewish Exponent
Riders Clock 12 Miles to Reach a $100,000 Goal

April 2017

Penn Medicine Orphan Disease Center Newsletter

Orphan Disease Center Newsletter