NORD Announces 20 Rare Disease Patient Groups Selected to Develop Natural History Studies as Part of FDA Cooperative Agreement
Big Pharma thinks of Natural History Study Registries as a game changer.
Fighting A Rare Disease
(Page 5, right hand column)
Town and Village Synagogue
APBD in the Town and Village Synagogue monthly newsletter
Our effort towards a potential cure for APBD have been covered by Yedioth Ahronoth on Sunday. This effort helps us raise money to bring LTKE to the clinic as well as assist in generating public interest in APBD.
We want to thank Mr. Ze’ev Guttman, who brought our efforts to the attention of Yedioth and has helped us raise public attention to the project during recent months!
So rare it is hard to find a cure for disease, APBD Revealed
Orly – Mariv (English translation)