The APBD Research Foundation hosts two chats per month – one geared towards caregivers and family members and the other for patients.  Please join us and be welcomed into our community. We look forward to chatting with you!

Our Monthly Caregiver/Family Chat

If APBD touches your life through a family member or loved one, whether you are a hands-on caregiver or within the circle of emotional support, we hear you. APBD has a profound impact on you. We invite you to come to our “Caregiver/Family Chat Group” on the second Thursday of each month at 8:30 pm (ET), 5:30 pm (PT).

Click here to register for the “Caregiver/Family Chat Group” here, or email with any questions.

Our Monthly Patient Chat

Our Patient Chat group is open to all who have been diagnosed with APBD (and their partners, too!).  Every month for 7 years we’ve been convening via conference call to share discoveries, brainstorm workarounds, compare experiences, and become the strong and cohesive community that we are.

Generally, we meet on the fourth Wednesday of the month at:
5:00 p.m. Pacific Time
6:00 p.m. Mountain Time
7:00 p.m. Central Time
8:00 p.m. Eastern Time

If you’re newly diagnosed, please contact me directly at so I can share our dial-in information with you.

Very best,
Volunteer Patient Chat Moderator