Let’s get the word out!
The APBD Research Foundation has an unprecedented opportunity to move forward toward a cure, but needs to identify more cases of APBD. Spread the word to help the Foundation test more individuals!
We have many resources, especially our OPEN LETTER. You can share via Facebook, Twitter, email, and list-serves. These ideas may help you get started:
- OPEN LETTER (English) – Website
- OPEN LETTER (English) – Word document
OPEN LETTER (English) – PDF format - OPEN LETTER (Hadassah) – Word document
- OPEN LETTER (Hadassah) – PDF format
OPEN LETTER (French) – PDF format
- OPEN LETTER (German) – PDF format
- OPEN LETTER (Russian) – PDF format
- OPEN LETTER (Hebrew) – PDF format
- OPEN LETTER (Spanish) – PDF format
- Posting the Open Letter on Your Facebook Page
- Conversation opener – PDF format
- Postcard for Neurologists and Urologists
- A Medical Mystery – PDF format
- APBD FAQs
Please use E-mail note to a rabbi for a more personal outreach. Send it with the two attachments
1)formal letter to the rabbi
2)the primer attached.
- (1) E-mail note—names have to be filled in for rabbi and member sending it;
- (2) Rabbi letter—name of rabbi needs to be filled in and member signing it; and
- (3) Primer—nothing needs to be filled in.
Survey research suggests that three different modes of contact is ideal for outreach:
(1) APBDRF website posting of this new letter to the rabbi with the primer;
(2) Jewish movement newsletters that summarize our message to their member synagogues (view example)
(3) Personal E-mail contacts to rabbi’s from our APBD community.
We have an abbreviated hyperlink that you can use in a Facebook or Twitter posting. It’s a quick way to direct your readers to the OPEN LETTER (English): https://www.apbdrf.org/open-letter
Write to Sharon@apbdrf.org with any questions.
Ads in newspapers and magazines are also a way to get the word out.
Print Ads: Ad sizes guide
- R_ZUCKERMAN LANDING PAGE approx size 8.5” x 8.5”
- MAIN YOSSI approx size 4.25 x 8.5
- MAIN YOSSI approx size 5.67 x 9.1
- MAIN YOSSI (Together) approx size 5.67 x 9.1
- YOSSI HELP FIGHT approx size 8.5” x 8.5”
- YOSSI HELP FIGHT ALTERNATE approx size 8.5” x 8.5”
- FAMILY HANDS BW approx size 5” x 12.5”
- YOSSI BW approx size 5” x 12.5”
- FAMILY HANDS BW approx size 12.5” X 5”
- R_ZUCKERMAN FULL PAGE (DRAFT) approx size 8.5” x 14”
Web Ads:
Gregory’s photo and by line:
Write to Sharon@apbdrf.org with any questions.