January 2026 • Foundation mourns the passing of former board member David Epstein; research updates

Written By Gabriel Baril

Table of Contents

  • Happy holidays

  • Unlock new match challenge opportunity

  • Pre-print published estimating the global genetic prevalence of GSD IV at 34,000

  • Dr. Matthew Gentry receives “Rare Disease Scholar Award”

  • Share your voice: take our GSD IV BioBank Survey

  • Create your Clinical Research ID (CRID)

  • In memory of those we lost in 2025 

  • Upcoming events

  • Make a tax-free impact with a gift from your IRA

 
 

About US

Gabriel Baril
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December 2025 Newsletter — 34,000 genetic prevalence of GSD IV preprint; Dr. Matthew Gentry receives Rare Disease Scholar Award