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Adult Polyglucosan Body Disease (APBD) Research Foundation
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Adult Polyglucosan Body Disease (APBD) Research Foundation
About Us
History
Mission
Board Members, Volunteers, and Staff
Scientific and Medical Advisory Board
Report: 15 Years of Progress
News Releases
Newsletter Archive
What is APBD
What is APBD?
Signs and Symptoms
APBD Symptom Checker
Brochure
Testing Info
APBD and GSD IV Guideline
Diagnosed
Newly Diagnosed?
Health Care Providers Directory
Personal Narratives
Natural History Study
Patient Registry
Research
State of the Science
Publications
Research Highlights
Past Grant Recipients
Get Connected
Sign up for Newsletter
Interested in Volunteering?
Contact Us
Events
Patient Chat
Family/ Caregiver Chat
Scientific Conferences
Patient Listening Sessions with the FDA
Workshops
APBD Tour de Friends Rally for Research
Rare Disease Day
Other Events
Ways to Give
Donations
Tribute and Memorial Gifts
Recurring Donations
APBD Planned Giving Program
Make a Gift with IRA
Sign-up for newsletter
Folder: About Us
Back
History
Mission
Board Members, Volunteers, and Staff
Scientific and Medical Advisory Board
Report: 15 Years of Progress
News Releases
Newsletter Archive
Folder: What is APBD
Back
What is APBD?
Signs and Symptoms
APBD Symptom Checker
Brochure
Testing Info
APBD and GSD IV Guideline
Folder: Diagnosed
Back
Newly Diagnosed?
Health Care Providers Directory
Personal Narratives
Natural History Study
Patient Registry
Folder: Research
Back
State of the Science
Publications
Research Highlights
Past Grant Recipients
Folder: Get Connected
Back
Sign up for Newsletter
Interested in Volunteering?
Contact Us
Folder: Events
Back
Patient Chat
Family/ Caregiver Chat
Scientific Conferences
Patient Listening Sessions with the FDA
Workshops
APBD Tour de Friends Rally for Research
Rare Disease Day
Other Events
Folder: Ways to Give
Back
Donations
Tribute and Memorial Gifts
Recurring Donations
APBD Planned Giving Program
Make a Gift with IRA
Sign-up for newsletter
2025 APBD Community Joins Millions of Rare Advocates Around the World for Rare Disease Day
Jake Mendlinger 2/24/25 Jake Mendlinger 2/24/25

2025 APBD Community Joins Millions of Rare Advocates Around the World for Rare Disease Day

Read More
2024 APBD Community Shines Bright on Rare Disease Day
Jake Mendlinger 2/29/24 Jake Mendlinger 2/29/24

2024 APBD Community Shines Bright on Rare Disease Day

Read More
2023 APBD Community Recognizes Rare Disease Day
Jake Mendlinger 2/27/23 Jake Mendlinger 2/27/23

2023 APBD Community Recognizes Rare Disease Day

Read More

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APBD Research Foundation
info@APBDRF.org | 646.580.5610
Mailing Address: APBD Research Foundation, 2257 East 63 Street, Brooklyn, NY 11234
Address for sending your charitable gift by mail: APBD Research Foundation, C/O Sharon Steinberg, 526 E. 20th Street, #1D, New York, NY 10009

© 2025 APBD Research Foundation is a tax exempt 501(c)3 nonprofit organization and our Identification Number (EIN) is 20-3609790. Contributions are tax deductible to the extent permitted by law.

Please be advised that this web site exists as a source of general information only. Any reference to a product, process, service or company does not constitute an endorsement by the APBD Research Foundation. Please consult your physician before starting a new treatment, diet or fitness program.

NORD and the NORD logo are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity.