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Adult Polyglucosan Body Disease (APBD) Research Foundation
History
Mission
Board Members, Volunteers, and Staff
Scientific and Medical Advisory Board
Report: 15 Years of Progress
News Releases
Newsletter Archive
What is APBD?
Signs and Symptoms
APBD Symptom Checker
Brochure
Testing Info
APBD and GSD IV Guideline
Newly Diagnosed?
APBD and the Deep Intronic GBE1 Gene Mutation
Navigating a Presymptomatic Diagnosis
Create your Clinical Research ID
Health Care Providers Directory
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Patient Registry
NORD Living Rare Study
State of the Science
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Interested in Volunteering?
Contact Us
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Patient Listening Sessions with the FDA
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Become a Monthly Donor
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Make a Gift with IRA
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2024 APBD Tour de Friends Rally for Research

Jun 8
Written by Gabriel Baril
Gabriel Baril
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2025 APBD Tour de Friends Rally for Research 
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2023 Million Dollar Bike Ride
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APBD Research Foundation
info@APBDRF.org | 646.580.5610
Mailing Address: APBD Research Foundation, 2257 East 63 Street, Brooklyn, NY 11234
Address for sending your charitable gift by mail: APBD Research Foundation, C/O Sharon Steinberg, 526 E. 20th Street, #1D, New York, NY 10009

© 2026 APBD Research Foundation is a tax exempt 501(c)3 nonprofit organization and our Identification Number (EIN) is 20-3609790. Contributions are tax deductible to the extent permitted by law.

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