We’re excited about joining the National Organization for Rare Disorders and the broader rare disease community around the world once again in celebrating Rare Disease Day. Leading up to February 28, we asked our community to wear zebra-striped bandanas and show their stripes for APBD and other rare diseases as imaginatively as possible!

The zebra is the official symbol of rare diseases in the United States and is noted for its black and white stripes, which are central to its uniqueness. While each of the 7,000+ rare diseases are unique, there are many commonalities that unite the rare disease community.

Complete the sentence: I dream about APBD research that …

I dream about APBD research that finds an effective treatment for APBD, slowing and reversing the progress of the disease.

Heidi and Rob

I wear my stripes with pride!


I dream about APBD research that alleviates our diminishing cognition and mobility.


I dream about a treatment to be found through research, that can slow down my progression. 


I dream about APBD research that will cure my wife


I dream about APBD research that will make the neuropathy pain in my feet and legs go away so I’ll be able to dance and do my splits forever.


I dream about APBD research that will find a cure and treatment for the disease.


I dream about APBD Research that I will no longer have to watch my loved ones suffering with the life altering affects of a disease that has already taken so much from them. 


Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.

Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year.