FAQs Archive - Page 2 of 2 - Adult Polyglucosan Body Disease Research Foundation (APBDRF)

An APBD patient reports having significant issues with blood pressure. It goes from being very high (in excess of 220 systolic) to very low (60 systolic). Fainting occurred when it dropped as well as when it soared.

Some patients with APBD manifest significant postural hypotension, sometimes leading to syncope episodes because of inappropriate cardiac response. These are related to autonomic nervous system involvement by the disease. Occasionally, patients also have hypothermia (low body temperature) and hyponatremia (low [...]

April 13th, 2018|

A patient reports significant pains in their lower extremities. It began in the groin and radiated down the legs. We have not heard of this as a symptom experienced by other APBD patients.

Pain is rare in APBD, less often than numbness or paresthesias. When it occurs, it involves feet and distal legs and is related to the peripheral neuropathy. Pain in the groin must be specifically evaluated to rule out other causes.

April 13th, 2018|

What is a neutraceutical?

A neutraceutical is a product isolated or purified from foods; it is generally sold in medicinal forms not usually associated with foods. In 1989, Dr. Steven DeFelice coined the term “Nutraceutical ” from “Nutrition” and “Pharmaceutical.”

April 13th, 2018|

Who determines whether a product is a nutraceutical or a pharmaceutical?

Depending upon ingredients and claims, the FDA may declare a product as a neutraceutical or a pharmaceutical.

April 13th, 2018|

What are the differences in regulation between pharmaceuticals and nutraceuticals?

Under the FDA, drugs must pass clinical trials before being released to the public, and the tests need to prove each drug is safe, performing just as the manufacturer claims. After these trials, your doctor can prescribe the pharmaceutical to you. [...]

April 13th, 2018|