Rare Disease Day is observed on February 28 every year around the world through 66 national alliances. It’s a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! The National Organization for Rare Diseases (NORD), of which the APBD Research Foundation is a member, is the official US partner for Rare Disease Day. Visit the website, rarediseaseday.org for all of the events and materials produced for this special day.
Rare Disease Day is a time for our community to come together in a collective display of support for raising awareness and improving the lives of all individuals and families impacted by rare disease, including APBD.